Every day I think about writing a blog. And every day, instead, I: change five poopie diapers; chase Noah from one end of the house to the next, telling him not to bite the cat, knock down a lamp, or steal his brother’s pacifier; I spend at last two hours cooking keto meals for Noah and another 3 hours doing everything but standing on my head in an attempt to get Noah to eat those meals; I pick up toys – not just some toys but pretty much every toy my boys own; I clean clothes and toilets; I tote Noah to and from doctor’s or therapy appointments; and I reheat my coffee over and over again, that warm sip always eluding me! Every day I think about writing a blog I also count: 100,101…112!
It seems only yesterday that we began the keto diet at Johns Hopkins, and we’re still going uphill. But just last week Noah had his 3-month keto check-up. He also had his 2-year check-up with his pediatrician. His doctors are floored, and his pediatrician called him a miracle. What a birthday gift!
In the past several months that Noah has been seizure free, he has come into his own. This means the sweet, previously affectionate child I spend all my time cooking and feeding sometimes wakes up cranky and snarly. He sticks out his bottom lip when he doesn’t get what he wants. He cries when I say “No” or he smiles and does exactly what I told him not to do! Avry is cruising along furniture, already taking single independent steps – and at only 10 months! So the two of them gang up on me, their daddy, or their grandmothers (whoever is around to be their victim!). They run interference, Noah pulling open a drawer I thought I had baby-proofed while Avry crawls like lightning into the the kitchen because I left open the gate in an attempt to stop Noah from pulling items from the drawer onto his head! Noah has learned to crawl onto the couch, which is great. He has also learned to crawl onto a chair and then onto a table, which is not great! No more pretty flowers in vases. Our ball pit is the only sanity solution for bathroom trips and quick, shove-some-food-in-your-mouth-before-you-starve moments! Oh, thank goodness for our ceiling light because the lamps have since gone to a better place. A moment of silence, please…
If I were to summarize the last several weeks, I’d say I am E-X-H-A-U-S-T-E-D and in desperate need of a pedicure. But really, who am I to whine when Noah, in the last two weeks alone, has learned to drink from a straw, nod his head “yes”, turn the pages in a book without eating them, climb onto his horsie, throw and catch a ball AND be perfectly age-appropriate by driving me utterly nuts? Noah sure has become a terrible two. But he’s also a miracle. I’ll take that over a pedicure any day of the week.
I just wanted to say that I follow your blog often and I am so happy to read how well Noah is doing. It is great to see all that he has accomplished. I worked for many years as a nurse at Johns Hopkins Children’s Center, and that is the best place I know. We pray for your son’s continued success.